Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more


KarenC Message
10 Jun 2013, 01:46 AM

My daughter Sadie was diagnosed with this disorder when she was a year old. She is now almost 4. Sadie also was born with Spina bifida which has led to many medical issues. My husband also has the micro duplication. I have a 5 1/2 year old son and a one year old daughter who are healthy but have not been tested. Sadie has a tracheostomy so she is nonverbal but communicates with her iPad speech program and sign language. She does not walk because of her spina bifida. It is very difficult to tell if the disorder affects her but all of her medical issues so far are related to her spina bifida. She is a very smart little girl and amazes us every day. She will be starting preschool in the fall so we will be able to see if she continues to do well academically.