Hello everyone. My unborn son was just diagnosed 46xy del 13q (33-34) as a result of amnio screening. The medical literature and "unknown"s from the geneticist is overwhelming. I'd love to hear from parents or those familiar with the disorder, especially if similar band deletions (33-34). Thank you!

This site for 13q is pretty inactive. Look on facebook for a more active one. There is a good support network on there. My son has 13q deletion as well.