Hello all, remember you, I have been diagnosed as SCLS patient in january 2013. I share my live between France and now Djibouti. Last week , I started to caught,fever and at least vomiting.I went to the emergency, had a blood test fortunatly it wasn't an attack !!! Today I get better,the heat is about 37° and I can stand it ! Just to say you : I was worried and now I can stay here with my husband. My hobby here is to treat cheetahs who are victim of smuggling .....I'm so happy !!!!! take care , Anne Laure.

Glad to hear the news Anne Laure. :)

Hello Josephite, I often read the story of your husband.How does he go ? When I have read his profil, he had had very severes attacks, does he work today or stay he at home ? How does he run his live? About me for the moment I don't take any medications,I am a chronic leaker but sometime I am worry about my future....at least ,are we all going to die from this syndrome? I don't hope so,but ....... take care, A-laure.