Hi, I am recently diagnosed with LC and I hope my experiences will help, however I am 53 years old. I was finally sent to the Kansas Univ. Med. Center and got my diagnosis there. I took Pepto-bismol four times a day for a month and then had about six weeks of normal life. At my re-check in Jan. the young Dr. mentioned that I probably needed to have a bone density test since my body had not been absorbing nutrients normally while I had diarrhea. I had the test the next week and I have osteopenia in my spine. So that is something to think about. Also, a lot of my hair fell out which I learned is a symptom of colitis. The woman who cuts my hair recommended I start taking zinc and that helped, although it may have been a coincidence.
Do you take your child to a regular GI or to a teaching hospital? If to a regular GI, how did you find him or her? Does he or she have other patients with this disease? Things were okay at KU Med but it takes a loonng time to get an appt. I know it makes a big difference which Dr. you have when you have a chronic disease so I am starting to wonder what to do next.
In the mean time I'm going to keep telling those who ask that it's a chronic auto-immune disease and, no, it doesn't matter what i eat. I hope something helps and I hope things are going well for your little one, thanks.