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Fish Oil

FredandNellie Message
28 Feb 2013, 10:32 AM

A recent news item said that taking fish oil and a low dose of aspirin daily helped keep away alzheimers and arthritis due to the anti-inflammatory properties of both. As baclofen and quinine didn't help with my spasms I started on Cod Liver Oil and aspirin some time ago and, for me, it works very well - much better than previous medications. i now get sleep at night without any of the spasming. Just thought I would pass that on for others.
Aish Message
4 Mar 2013, 10:10 AM

Will give it a try. What works for some may not work for others but all that can be done is try everything and fingers Xd
Unsworthj Message
19 Mar 2013, 04:20 AM

Check the fish oil. I took it until I saw the LGFA in it. Check it out. LCFA can't be good?
SallyBuckner Message
1 Apr 2013, 11:47 PM

Fred and Nellie, could you give details--dosage, etc.--of fish oil and aspirin? I was taking Requip (designed for Parkinson's and Restless Legs Syndrome) for jumping legs at night; it worked beautifully for about 2 months, then suddenly I'm having jumping legs during daylight hours, much more severe jumping; I'm working my way off Requip, but don't know what to replace it with. I'd like to take fish oil and aspirin rather than meds with bad side effects.
FredandNellie Message
3 Apr 2013, 09:18 AM

Hi Sally I take a stadard one-a-day cod liver oil capsule that I buy from a chemist or supermarket, together with half of a normal aspirin tablet. I do have to say that my symptoms are not as bad as yours seem to be, but this dose has stopped most of my night time spasms which neither Baclofen nor Quinine touched. From reading the entries on this site, we may have this same condition, but we all seem to have different degrees of symptoms; react to different drugs in different ways; and get different degrees of medical help. Wishing you, and all fellow AMN sufferers wherever in the world, all the very best. With love and light.
SallyBuckner Message
3 Apr 2013, 12:14 PM

Thanks so much, Fred & Nellie. You're absolutely right that symptoms and drug reactions can differ greatly. I'm happy to report that the bad spasms have slowed down now that I'm getting off Requip. But I expect to have twitching legs from now on, and the oil and aspirin may do the trick. Is it important that the oil be cod liver oil, or does any fish oil work: ,,,Wishing you the best, Sally
lowrider38 Message
3 Apr 2013, 01:54 PM

I have tried fish oil in the past and had side effects, I didn't like the feeling at all. Made me very dizzy and nauseas for some reason. Also upset my stomach pretty bad. I have occasional spasm's during the day but I sleep through whatever ones at night. Just remember there is side effects for even over the counter stuff. You should check with your doctor before starting fish oil or daily aspirin regiment.
SallyBuckner Message
3 Apr 2013, 02:57 PM

Thanks. You've been very helpful.
Unsworthj Message
4 Apr 2013, 05:02 AM

Just an idea....check with your doc? I read the incrediates and it had LCFA.....isn't that our problem? Just a thought? Uns
lowrider38 Message
4 Apr 2013, 10:29 AM

There is different lengths of LCFA's. The ones our body makes are unable to be processed and they build which in turn affects our nerve's. I don't know this for sure but I would assume these ones are short enough to be processed. Although because of our disease you should check with doc before taking anything especially an oil. Problem is most doctors don't know anything about AMN, I got to drive to Boston to see a specialist.
Unsworthj Message
5 Apr 2013, 04:25 AM

Hey Lowrider38. That's all I was sayning, ck with the doc. I just read the ingrediants. AND, they need spell check on this site! I just looked at my spelling, it must have been the wine! hahaha Stay strong and fight the good fight!!! Uns
lowrider38 Message
5 Apr 2013, 10:46 AM

Unsworthj how does alcohol affect you? I have one drink and I can't freakin walk. Alcohol is a central nervous system depressant and my nerves are already messed up. Just wondering how it affects others with AMN.
Unsworthj Message
6 Apr 2013, 05:48 AM

Hey lowrider38. ?que paso? Sorry it took me so long. I drink more than the average bear and am OK...I'm 60 years old and some what of a professional drinker. ( HA, not really, but close! haha). I think that everyone is different with AMN ? Don't you? I kinda think that I can't drink like I used too, but I'm "OK". One drink? hmmm. Are you taking any medication? I've not heard of "one drink" being a problem a matter of fact, at the the Kennedy center (Boston), they said that a couple of beers was a good thing. Have you talked to your Doc? I don't see one because there's "no treatment, no cure"...why waste the time and the dough? Besides, I can't find one in Dallas/Ft Worth that's ever heard of AMN! How old are you? If I can help, I'll share my story and we can compare notes. Keep up the good fight and keep up a good attitude! Cheers, John
lowrider38 Message
6 Apr 2013, 05:38 PM

I'm 26 years old, I was diagnosed a little over a year ago after my primary saw that my adrenal glands weren't working. I've had trouble with walking for about three years. I've talked to my primary, neurologist in Cooperstown ny and see a specialist in Boston. They all say if I do consume alcohol it should one or two max. I used to be able to drink a couple and still walk. My legs are getting worse though, AMN affects everyone differently. My doctors have no idea how it will affect me or anyone else for that matter. And I am on plenty of medication, the only one that reacts with alcohol is baclofen. You will black out if you mix the 2.
Unsworthj Message
7 Apr 2013, 04:57 AM

WOW... but Lowrider, they say baclofen is the only med that reacts with booze, but what about the "combination" of the other drugs? You said that you were on "plenty of meds"....this + that + that+ this = problem? I don't know but I've known many people over the years that were over medicated and there was a reaction with the combination of meds. Ya know what I mean? Don't get me wrong, I "think" that the AMN + booze makes walking worse (I nned cane, walker, scooter, but I'm 60 Y.O., you're 26), but one drink? Maybe ask your doc? If he's not the expert, ask him for someone who is. You're in N.Y.? I'm in Fort Worth TX Does the cold weather make it harder to walk for you? It does for me...well, I can't really walk, but I'm not in a wheelchair.. Hot weather is better for me. Funny (not really funny) , M.S. people can't do hot weather, I can't do cold. Getting back to having a drink, check your meds. I wish I could be of more help....ask me specific questions and I'll tell you my situation. May not help your specific situation, but you can take it for what it's worth? Take care, God Bless, John
lowrider38 Message
7 Apr 2013, 03:02 PM

The cold does definitely make my legs worse, my body tightens up and I feel like the tin man. I plan on moving to North Carolina after I'm done with school. And I have been on the same meds for over a year know and they have helped me a lot. Either way I'm not too concerned with alcohol with I workout a lot and booze is counter productive to that. There is so many mutations and variations that it is impossible to figure out how it will affect individual people. My grandfather had psychological issues for over a decade than couldn't walk, he died about a year after he couldn't walk at age 54. My brain is unaffected but I've had serious issues with walking for 3 yrs. 2/3rds of AMN patients have walking troubles, 1/3rd it effects brain. It could do both though like my grandfather, any day it could start effecting my brain. This scares me more than not being able to walk.