Hi everyone. I recently joined RareShare due to my T-Cell LGL diagnosis and stumbled upon drnezin's profile a few minutes ago to discover the PAH community. Wow!
I was diagnosed with PAH in summer '08. First, I was on Ventavis (iloprost) inhale solution for one year which worked fine before switching to the newest Tyvaso inhale solution. I have been on Tyvaso ever since and doing well considering everything.
For having the T-Cell LGL leukemia just recently, my priorities in fighting my complicated health challenges have shifted dramatically. However, I'm keeping a close eye on PAH as well. In fact, there is a potential connection b/w the two as I have recently heard.
I would be delighted to chat with anyone with this condition.