Hi Everyone, I was diagnosed with LGL 2years ago. At the same time they found that I had Multiple Myeloma plasma cells in my bone marrow also. Only 10% of my cells were MM cells, but my recent bone marrow biopsy showed that they had increased. I don't know if a lot of my symptoms are LGL or Multiple Myeloma. Has anyone else been diagnosed with two blood cancers? If so, how are you being treated? Hope everyone is doing well. Sandra

Hi Sandra, I dont kow anyone with two blood cancers, in fact here in Australia I dont know anyone except one other member that comes from my country that has LGL. I think even my GP had to be sent info from my hematoligist because he hadnt come across it before. My lymphcytes are about 6 and the norm is under 4. Except for the mouth ulcers I havent any symptoms and dont have treatment. I guess down the road I might need meds.. I do get a few more sore throats than I did in the past. I go to the gym three times a week and have twice yearly blood tests. I was diagnosed two years ago. Pam.

Hi Sandra I have Non Hodgkins Lymphoma (b cell) and T-cell LGL. Found the NHL when my spleen was removed to increase platelets 5 months ago. Both have spread to my liver and lymph nodes. It is very rare to have two blood cancers at the same time. I now wonder if LGL patients with enlarged spleens should have them removed. It solved my low platelet and low neutrophil counts and allowed my to get off Neupogen. I've tried all of the normal treatments over the last eight years but got the best response from the spleen removal. Right now my lymphocytes are over 80% and need to be addressed but I just need a break from dealing with all of this. Quality of life has been the basis for treating conservatively. There is no cure so I just manage problems as they come up. Not treating the b-cell lymphoma as it is slow growing and not even showing in my blood tests.

Hi Sandra, I'm sorry to know that you have the bigger challenge of having to deal with not one but two types of cancers at once. Something tells me you are one strong individual. We can all learn from each other and provide support in whatever capacity possible. Just recently, I'm getting to hear and learn about some folks with such cases - multiple rare conditions. I.e. T-Cell LGL with Aplastic Anemia AND Rheumatoid Arthritis, etc. I was diagnosed with cyclic neutropenia for 11 years before LGL hit me last summer. I was also diagnosed with another rare condition of Pulmonary Artery Hypertension in '08. I'm now deaf and legally half blind. But life has to go on... As SKing says, quality of life should be of more focus at some point and definitely at certain periods of time... Cheers! @Sandra and @Sking: Please consider joining a "closed" facebook group on LGL patient support that I formed just recently. It's growing and could become even more useful with input from members like you. Pamela from Australia, btw, is our newest member along with numerous others as of earlier today. Please copy paste the below link into your browser. Hope to see you there. http://goo.gl/Ekzl8 Regards.

Sandra I am curious about the multiple myeloma - did you have a lot of broken bones growing up? I have heard that can be a causative factor. I am a medical junkie now...curious about everything...

Hello Solid Orange, My name is Teri and I was diagnosed with T-Cell (LGL) Leukemia in 2010. I take Methotrexate only. I went to your group on Facebook and I sent a request to join, I hope that was ok?? I just wanted to check. Hope to read more soon!