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Patient Advocacy Group

epjfk Message
31 Dec 2012, 04:49 AM

Lada, I have a meeting in January with an attorney who knows what is needed to form a non-profit corporation. His office has already given me some information as to what is needed to form such a group. I am in the process of working on and out the requirements for - The Dent Disease Foundation. Anyone who is interested in joining or helping out with this large endeavor please go to our website, dentdisease.com. Thank-you. Hope all had a Peaceful Holiday Season and Good Wishes for a Healthy New Year! C. Forrest
LadaBL Message
1 Jan 2013, 07:48 AM

Cathy, that's great news! Let us know if we can help in any way. I know that Jay was interested, maybe give him a little nudge? I have also talked in London to two wonderful women from the US Lowe's foundation and I have asked them if you could refer to them for help, they were very wellcoming. I'll email you their addresses. Lada
epjfk Message
2 Jan 2013, 11:10 PM

Sounds good, Thank-you.
epjfk Message
31 Jan 2013, 01:10 AM

Hello to all, The official formation of The Dent Disease Foundation has begun. I am currently searching for 5-7 people to serve on the Board of Directors. I am going to set an appointment with a CPA. Federal and State law is very specific on requirements for non-profits. I am also writing a mission statement for our future foundation. Just three assignments for now, many more to come no doubt. But the goal of slowing down the disease to ensure a better quality of life and then on to a cure is worth it. Do not forget about the dentdisease.com website and if anyone is interested in being on the board please email me at epjfk1@sbcglobal.net Thank- you.
LadaBL Message
31 Jan 2013, 01:35 AM

Fantastic! Congratulations and good luck! Lada