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Stem cell transplant / therapy - gene therapy

fdemiranda Message
7 Dec 2012, 05:13 PM

For all I have read, I think that our solution might come along this line. Any experience or knowledge around this? There are companies already offering Stem cell therapy
stevensims Message
12 Dec 2012, 07:44 PM

Hi, A Bone marrow transplant is a very risky procedure and you would need to have active early disease progression showing with Gadolinium enhancement on a MRS Scan, this is still experimental and has been successful with children but there is still a high mortality risk with GVHD (Graft verses host disease) there has only been a handful of Adult ALD transplants and they have not gone very well? also it will cost £100,000, but I think if my disease went Active I would take the gamble if I had the chance! Best wishes Steve