Thanks Souleiman for posting about this new treatment. I recently asked my dermatologist about it and she did not recommend it as of yet since the results are not conclusive. But I think if no one with this disease tries these new treatments, how are we ever going to know what works and what doesn't (keeping in mind of course that a treament for one person does not necesarily work for someone else).
I currently live in France but I'll be moving to the UK this week actually. I am tempted to contact this doctor of yours. However, I will not be staying in the UK long enough to follow the full treatment, so I would like to talk to him and see what he knows about this treatment in France. Does he take on new patients?
md00, you are right about not trying out the accutane. there are too many side effects, and everything I've read says that the results don't last. I know in my case that being in the sun makes my condition much much worse, even if I don't get a sunburn. That doesn't mean I don't go out in the sun, but I wear a really high SPF cream and limit my time in the sun, no real sunbathing.
I had found a cream that was more or less working for me, but it has been discontinued which is really upsetting. I've able to find small stashes at a couple pharmacies and buy it all, but it's not going to last all that long.
I've tried the Gold Bond medicated lotion, which doesn't do much for me. However, the CVS brand of medicated body powder helps to dry things up. Funny thing is, the Gold Bond version does nothing for me! I also use a very gentle body oil "soap" and now an ayuvedic soap that seems to be ok for my skin.
Has anyone tried accupuncture?
Thank you to everyone for your poste. The more we talk about this the more information gets around and we can help contribute to a treatment.