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Anyone here?

Rinne Message
20 Nov 2012, 03:17 AM

Hi everyone, I'm not sure if anyone actually uses this but I am looking for any information possible. My 15 month old daughter has had fevers every three weeks since she was 9 months old. They last 3 days and go up to 104 degrees. She is absolutely miserable during these fever episodes and I am looking for advice on how to bring the fevers down. As right now we alternate Advil and tempra and I'm worried about her system having to much of these. How do you cope? What symptoms do your little ones have? And what medications are they on? What treatments are their doctors prescribing? Sorry so many questions but I am feeling really alone in this and nobody seems to have any answers.
erinb78 Message
20 Nov 2012, 09:34 PM

Hi Rinne. We went through the same thing with my now 4 year old. When she was about 2 1/2 she started getting high fevers (103-104) that lasted 3-4 days every 2 weeks. She was miserable, wouldn't eat, couldn't sleep and would complain that her throat was hurting. The lymp nodes on her neck would also get very swollen. Every time we would take her to the doctor and they would check for strep throat (always negative) and could never find anything wrong with her. They always said it was just a virus and to give her fluids and alternate Motrin and Tylenol. I too was worried about her having all the meds in her system but the doctor told me that as long as it wasn't daily for months it was safe. After months I finally got them to do some bloodwork and they found her white blood counts were a little high. Eventually they referred her to an immunologist. He actually diagnosed her with PFAPA. We started giving her oral steroids when she started having an episode and it usually stopped the fever but not the symptoms. He also started her on Colchicine which was supposed to stop the episodes. I was very uncomfortable with her taking the medicine and had read a lot about kids having success with T&A. So this past August she had her tonsils and adenoids taken out. Since then she hasn't had any episodes. She is finally healthy and actually gaining weight. Having the T&A was the best decision we made! I'm not sure if this helps at all but if you have any other questions let me know.