HELLO family Well been in the hospital since 9/24/12 the cough is so bad that i cannot hold my water any longer,,As of today 2000 cellcept 260 Iv prednisone,Plaquenel, sorry for any mis spellings....Today I am very tired they are recommending that I go to John Hopkins..They found a new spot on my lungs the doctor says he don't want to keep doing a lot of x rays and MRI's..because of radiation.Look like every time i feel really good that's when I'm at my worse..This time really scared me because no air was coming in i was gasping the only thing i could see was people staring at me.

Hi Onetouch. Sorry to hear that you have been in hospital. As we all know, it really sucks when it happens. I have to ask if you have been on IVIG? I do realize that I am very lucky to be in Canada, where the cost of this treatment is not an issue. Having been on it for a year now, and most likely the rest of my life, I can say that it is amazing against this disease. It not keeps my legs working pretty well, bu brought my lungs back from 10% capacity to 70% capacity, and has maintained them at that level. My last x-ray checkup last week showed them being amazingly clear for having ILD. I will continue to pray for you, that you find something that helps you feel better, and hopefully keeps this more more under control. God Bless and Take Care. Wayne

Thank you so much As of today still in the hospital 10/01/12.medication spike the sugar up 350....Staying strong and i am going to ask about the medication you mention...

I'm also on Ivig:) I love it. Dr Christopher-stine at johns Hopkins myositis center is who prescribed mine. Hope this helps.

oh thank you that where they want me to go Johns Hopkins