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Cylindromatosis developments

insgitne11 Message
18 Dec 2008, 01:33 AM

Hi all- I am a medical student trying to find patients with cylindromatosis. I have found a few of you and I know a lot more are out there. Anyways, the best way to get research done is to get patients in groups. This is hard to do with such a rare disease but I am dedicated to understanding, treating, and curing this disease. Check out my blog!