I found you on FB!! I sent him (DR) an email and he responded their is a post on FB too from another mom who found him. He is very willing to communicate, I signed release forms and then I haven't heard back. I have several appts coming up, so I was going to wait until results to contact him again. My daughter has long fngers and toes and toes are now becoming hammered and locked, flat feet, deforming ankles, knees popp out of joint, she has 3 different curves of scholiosis (new xray) eye site is bad, Myopia, and Optic nerve hyperplasia, and Strabismus, she also has extrusion of the chest cavity, Craniosynostosis, was born with Gastroschisis, she is delayed in many areas. Like I said she is adopted, so she was also drug and alcohol exposed before birth, which may have different effects on her delays. Wow, that is all a mouth full. Haha. I sent you a FB request also, as that is much easier for my to log on to. But either way works for me. I just love having extra info and someone who understands the struggles we go thru. Your daughter is very cute by the way!