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Unnecessary treatments?

LadaBL Message
30 May 2012, 06:29 PM

Have you (or your child) ever received any immunosupressive therapy? (like steroids, cyclophosphamide or cytoxan, cyclosporine, mycophenolate mofetil/MMF/prograf etc.) Thanks Lada
valgraham Message
1 Jun 2012, 08:09 PM

No, Lada. My son, FJ, has never received this.
epjfk Message
4 Jun 2012, 12:55 AM

My son did take prednisone for awhile in elementary school. It only made his face bloat. The doctor then took him off it when it had no affect on his urine tests. He was also tested for growth problems as he got older, either due to the taking of the steroids or the Dent's. But he is now 5'10".
valgraham Message
4 Jun 2012, 08:39 AM

Sorry Lada, I'm mistaken - my memory is rubbish! Following an episode of acute renal failure 4 years ago, FJ, took prednisilone for around 6 months.
LadaBL Message
6 Jun 2012, 09:15 PM

Thanks
minu Message
12 Oct 2012, 04:24 PM

Lada, Sorry just saw this. My son never had any kind of steroids. (He did take growth hormone for 6 years, ages 12 to 18)
LadaBL Message
17 Oct 2012, 08:26 PM

Thanks to all who responded. I am also opening a new topic, who had kidney biopsy? Lada