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hwagon Message
7 May 2012, 10:35 PM

Hi! I requested this community be started for those of us whose children have been diagnosed with 16p13.11 partial duplication. I have yet to connect with other parents & would love to chat about our incredible kids!
blazingcolty Message
23 Jan 2013, 08:11 PM

I just learned about this site from my son's doctor. We live on Long Island in NY. Would love to talk to someone else with this issue.
Mammaw Message
19 Sep 2014, 07:20 AM

hwagon and blazingcolty, I have a daughter and grandson with this disorder. I am also a member of a support group for this disorder. If you would like to contact me to learn more, you can email me at: For email topic, please type "16p" so I will know it is important in case it ends up in my spam.