Hi! I requested this community be started for those of us whose children have been diagnosed with 16p13.11 partial duplication. I have yet to connect with other parents & would love to chat about our incredible kids!

I just learned about this site from my son's doctor. We live on Long Island in NY. Would love to talk to someone else with this issue.

hwagon and blazingcolty, I have a daughter and grandson with this disorder. I am also a member of a support group for this disorder. If you would like to contact me to learn more, you can email me at: diamondnthemaking@yahoo.com. For email topic, please type "16p" so I will know it is important in case it ends up in my spam.