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I need to ask more questions.

Pamela311 Message
29 Apr 2012, 08:31 AM

Neither my GP or Hematologist mentioned the leukemia word when I was told I had Tcell LGL. I'm thinking now I should have asked more questions, because it wasn't until I did research on the internet, did I realise this could be serious. When I questioned the GP "was it leukemia?" all he said was"which ever way you want to look at it" ??? My latest blood test showed my white blood cell count has gone down, it's now 4.6. Here in Australia the normal range is under 4 and my highest reading has been 5.8. I noticed the last two weeks my mouthulcers are not so severe.. The only change in lifestyle since my last blood test six months ago is that I go to the gym and have increased my vitamin intake.
ddixon Message
24 Jun 2012, 07:40 PM

LGL doesn't really fit with the other leukemias despite it's name. When my husband was first diagnosed I quickly realized I should refer to it as a "blood disorder" at first because people freak when they hear the word "leukemia". It typically has little or no impact on life span and for many people the only treatment they need for years is monitoring of levels. I hope you've found some reassuring info since you posted (and got your diagnosis)!
Pamela311 Message
26 Jun 2012, 11:55 PM

I usually say " blood disorder" when I tell people. I told my dentist and he didn't seem to know anything about it, I guess because it is rare.