I'm hoping others with ODDD might read this community group and come in contact with each other. I'm a 55 year old man who has a definite diagnosis of ODDD. I suffer from weakness in my lower extremities, neurogenic bladder and bowel problems. I'm ansous to compare notes with others with ODDD. I'm also participating in a study of the ODDD and conession 47 that is being done in Canada. I hope someone else will join this community.