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Vasovagal Syncope

What is Vasovagal Syncope?

Vasovagal Syncope is disorder characterized by fainting due to a sudden drop in blood pressure.

 

Vasovagal Syncope is disorder characterized by fainting due to a sudden drop in blood pressure.
Acknowledgement of Vasovagal Syncope has not been added yet.
Prevalence Information of Vasovagal Syncope has not been added yet.
Synonyms for Vasovagal Syncope has not been added yet.
Cause of Vasovagal Syncope has not been added yet.
Symptoms for Vasovagal Syncope has not been added yet.
Diagnosis of Vasovagal Syncope has not been added yet.
Diagnostic tests of Vasovagal Syncope has not been added yet
Treatments of Vasovagal Syncope has not been added yet.
Prognosis of Vasovagal Syncope has not been added yet.
Tips or Suggestions of Vasovagal Syncope has not been added yet.
References of Vasovagal Syncope has not been added yet.
VVS Created by jrlas425
Last updated 27 Jul 2008, 01:32 PM

Posted by jrlas425
27 Jul 2008, 01:32 PM

Discovered that I had VVS about 2 years ago. Recently , I have been going thru Mayo in jacksonville fla. They have diagnosed me with this , but also that I have a rare form of VVS. when I mentioned the form of VVS that I had the physican assistant she had never heard of it. This just confirms to me that rare cases are not subject in medical school, just wonder why

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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I'm a writer and artist. I love research. I' love soccer and watching ballet. I have many chronic illnesses but try not to let them affect me.
My medical conditions: Dysautonomia-POTS, hypermobile joints, Sjogrens Syndrome, born with urinary bladder reflux

 

 

Mothers' medical conditions: AVM-brain, Myasthenia Gravis,...
I was diagnosed with neurocardiogenic sycape in december of 2005.
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VVS

Created by jrlas425 | Last updated 27 Jul 2008, 01:32 PM


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