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Pemphigus Vulgaris

What is Pemphigus Vulgaris?

Pemphigus Vulgaris is a rare autoimmune skin disease that causes blisters. Most cases can be controlled with treatment, which consists of steroid medicines and other medicines to suppress the immune system.

 

Pemphigus Vulgaris is a rare autoimmune skin disease that causes blisters. Most cases can be controlled with treatment, which consists of steroid medicines and other medicines to suppress the immune system.
Acknowledgement of Pemphigus Vulgaris has not been added yet.
3.8http://www.orpha.net
Synonyms for Pemphigus Vulgaris has not been added yet.
What causes pemphigus vulgaris? PV is an auto-immune disease. The immune system normally makes antibodies to attack bacteria, viruses. and other 'germs'. In people with auto-immune diseases, the immune system also makes antibodies against a part of the body. In people with PV, antibodies are made against a protein that binds the skin cells together. This antibody attack 'dissolves' the binding between some skin cells and causes the cells to separate from each other. Fluid builds up between the separated cells and forms blisters. It is not known why PV and other auto-immune diseases occur. It is thought that something triggers the immune system to attack the body's own tissues. Possible triggers include viruses, infection, or other environmental factors. There may be an inherited factor which makes some people more prone to develop auto-immune diseases.
Symptoms for Pemphigus Vulgaris has not been added yet.
Diagnosis of Pemphigus Vulgaris has not been added yet.
Diagnostic tests of Pemphigus Vulgaris has not been added yet
Treatments of Pemphigus Vulgaris has not been added yet.
Prognosis of Pemphigus Vulgaris has not been added yet.
Tips or Suggestions of Pemphigus Vulgaris has not been added yet.
References of Pemphigus Vulgaris has not been added yet.
Incredibly Rare Created by mrsalibee
Last updated 27 Mar 2013, 07:55 PM

Posted by mrsalibee
27 Mar 2013, 07:55 PM

Hello, I found that this illness can be very lonely. I was diagnosed 1 year ago after months of going to doctors and many many test. I thought by joining rareshare I would have the opportunity to conversate with others going through what I am. I am still very new to this thing and support from others like me is helpful. It's a battle I believe I will over come! Is there anyone who is in remission? If so how long did it take you to get there?

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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A wife, mother of 4, grandmother of 8!

Officially dx with Pemphigus, an autoimmune blistering disorder, in Aug 2018. I have other autoimmune issues including PCOS, Hashimotos, and a muscle issue...

I am a 53 year old widow, diagonised with occular pemphigoid 2005. I will never understand this disease. It is a battle every day. I am still able to work.

 

I have one child, a girl, and no...
I am married and have a 28 year old son. Last year I was given some antibiotics for an infection that I never had before and while I was taking them I came out in a rash. It was first thought I was...

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Incredibly Rare

Created by mrsalibee | Last updated 27 Mar 2013, 07:55 PM


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