Hereditary Pancreatitis is a condition characterized by recurrent episodes of pancreatic attacks.
|Abdominal pain||Abdominal pain|
I have suffered from tummy problems for along time im 43. Diagnosed me with HP this week. My sister and nephew has it.I have been given the the info on ICT. Will follow up when i know more.
Hi, I'm 21 years old and was diagnosed four years ago. I've recently noticed that my heart races and my chest becomes tight during an attack. Has anyone else had this problem? I was attack free for six months and now this just started
Has anyone heard of stem cell research geared towards replacing islet cells?
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
I am a home builder, and plumber, with bad plumbing to my pancreas. I have a teenage son that I spend a lot of time building and tweeking everything from Pinewood derby cars, to...
I am not sure I am doing this right. There...
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