Guillain-Barré Syndrome
What is Guillain-Barré Syndrome?
Guillain-Barré Syndrome is a rare nervous system disorder in which the body's immune system attacks part of the peripheral nervous system.
| Name | Description |
|---|---|
| Weakness in the legs | Weakness in the legs, which can later spread to the arms and upper body. |
| Tingling sensations in the legs | Tingling sensations in the legs, which can later spread to the arms and the upper body. |
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| Title | Date | Link |
|---|---|---|
| Guillain-Barre Syndrome: What we know about the disease Travis Frederick is fighting | 08/25/2018 | |
| Guillain–Barré Syndrome Associated with SARS-CoV-2 | 04/25/2020 | |
| The rare condition slowly paralysing my arms and legs | 12/06/2020 | |
| Man Paralyzed from the Neck Down from Rare Disease Makes Incredible Recovery, Now Back at the Gym | 12/24/2022 | |
| I went from squatting 350 pounds to completely paralyzed at 26 in a matter of weeks. Doctors told me it was a herniated disk, but it was Guillain-Barré. | 03/12/2023 |
Clinical Trials
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
Enrolling is easy.
- Complete the screening form.
- Review the informed consent.
- Answer the permission and data sharing questions.
After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.
Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.
Visit sanfordresearch.org/CoRDS to enroll.
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