Publication date: 8 Sep 2026
Beginning with some of our largest communities, RareShare will be preparing and posting disease guides providing summary information for patients, families and caregivers on our website. The first three guides for Systemic Capillary Leak Syndrome, Large Granular Lyphocytic Leukemia and Adrenomyeloneuropathy are in the Guides section of the RareShare website. They can also be accessed directly from the following links:
Systemic Capillary Leak Syndrome
Large Granular Lymphocytic Leukemia
As we move forward with additional guides, please feel free to send us your comments on how we can improve their content through our support@rareshare.org mailbox.