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News Articles



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COVID-19 may present elevated risks for some rare disease patients

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Rare Disease Week on Capitol Hill, February 25-28

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KCNMA1-Linked Channelopathy Featured in Diagnosis

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Diagnosis by Crowdsourcing?

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How to Use the RareShare Network for Rare Disease Patients

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Friedreich's Ataxia Research Alliance Sponsors Cycling Events

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Gene Repair Offers Hope and Challenges

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RareShare's 10th Anniversary

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Recruitment for Danon Disease Study

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Listen to our latest podcast on coping with a child's rare disease diagnosis

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RareShare Team Spotlight

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What is RGTF?

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RG Looking for Patient Stories

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Rare Disease News Links on RareShare

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A Huntington’s Disease Patient

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Gene Therapy Approvals Bring Hope to Rare Disorder Communities

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Contribute to the Future of Heritable Disease Research

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Race for 7 - The Race Against Rare Diseases Gathers Momentum

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Rare Genomics Institute Helps in Hailey-Hailey Disease Treatment Study

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RareShare Reaches Out