Last updated 29 Aug 2018, 03:19 AM
Race for 7: Race for 7 is an awareness run organized by Organization For Rare Disease India (ORDI) – a team committed to address the challenges of rare disease patients and their families in India.
Purpose: To raise awareness about rare diseases, to empower patients and their families with access to national and international resources.
Rare diseases: They affect more people than the name suggests. In fact 1 out of 20 Indians. Among these, 50% are children; sadder still, most of them die before their fifth birthday due to lack of appropriate medical intervention. The scenario worsens due to lack of early diagnosis along with expensive treatment options, which pose major hurdles in rare disease management. But the race against the rare diseases is gaining momentum….
As per record, more than 7000 rare diseases have been documented so far.
Racefor7 symbolically represents the 7000 rare diseases with 7000 people running for 7 kilometres.
One of them, we’d like to believe, would be you.
Do join ‘Race for 7’, because only our matching strides with rare disease patients would ensure they are not running a losing race.
Rare Disease Day: Globally, the last day of February is commemorated as Rare Diseases Day since 2008. Click here to know more about Rare Disease Day.