Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Triple X Syndrome

What is Triple X Syndrome?

Triple X Syndrome is a form of chromosomal variation characterized by the presence of an extra X chromosome in each cell of a human female.

 

Triple X Syndrome is a form of chromosomal variation characterized by the presence of an extra X chromosome in each cell of a human female.
Acknowledgement of Triple X Syndrome has not been added yet.
42.5http://www.orpha.net
Synonyms for Triple X Syndrome has not been added yet.
Cause of Triple X Syndrome has not been added yet.
Symptoms for Triple X Syndrome has not been added yet.
Diagnosis of Triple X Syndrome has not been added yet.
Diagnostic tests of Triple X Syndrome has not been added yet
Treatments of Triple X Syndrome has not been added yet.
Prognosis of Triple X Syndrome has not been added yet.
Tips or Suggestions of Triple X Syndrome has not been added yet.
References of Triple X Syndrome has not been added yet.
Active members? Created by MENDOMAID
Last updated 2 Apr 2016, 05:59 PM

Posted by MENDOMAID
2 Apr 2016, 05:59 PM

I am an older woman and may have Triple X syndrome. There is only one post on this forum but I would like to compare experiences and problems. From what I have read women with Triple X, unless they have a supportive family, can have various problems. Even with loving support Triple X women can have significant health problems and social problems. Not much research about TripleX and most of the studies were limited, done years in the past and done by men. Hope to hear from you.

xxx syndrome Created by granny
Last updated 31 May 2009, 07:28 PM

Posted by doolelaine
31 May 2009, 07:28 PM

My daughter is 8 years old & we just found out she has triple X. Have not had the follow up appointment yet with the geneticist doctor for explanation. Have received some information about it from the genetic counselor that called us & told us. I've done some looking on internet and have found some info. Where is the best place with true, accurate, info on this? How well known is this? Are there any studies? Thanks for any info.

Posted by granny
2 Jan 2009, 01:58 AM

My daughter is 21 yrs old with triple x,I have questions and answers for any one who would like to talk.

Community Resources
Title Description Date Link
Triplo-X Syndrome

An online resource for people affected by Triplo-X Syndrome.

03/20/2017

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

Expert Questions

Ask a question

Community User List

I was born with Cystic Hygroma & would like to know/relate to others that have this same disease!
I have a granddaughter born with fraser syndrome,she is 6 years old as of 12/27/08.

 

I have questions and answers for anyone.

 

I also have a 21yr old daughter with triple x syndrome.

...

My name is Nicole and I have three children, 2 boys ages 5 and 3 and a triplo-x daughter that is 6 months old.

Start a Community


Don't See Your Condition On Rareshare?

Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.

FAQ


Have questions about rareshare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Discussion Forum

Active members?

Created by MENDOMAID | Last updated 2 Apr 2016, 05:59 PM

xxx syndrome

Created by granny | Last updated 31 May 2009, 07:28 PM


Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.