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Transverse Myelitis

What is Transverse Myelitis?

Transverse Myelitis is a neurological disorder causing axonal demyelination.

 

Transverse Myelitis is a neurological disorder causing axonal demyelination.
Acknowledgement of Transverse Myelitis has not been added yet.
Prevalence Information of Transverse Myelitis has not been added yet.
Synonyms for Transverse Myelitis has not been added yet.
Cause of Transverse Myelitis has not been added yet.
There are a number of symptoms that effect patients with Transverse Myelitis
Name Description
Back pain Localized lower back pain
Sudden paresthesias in the legs Sudden paresthesias is abnormal sensations, such as burning, tickling, pricking, or tingling.
Sensory loss Sensory loss
Paraparesis Paraparesis is partial paralysis of the legs.
Diagnosis of Transverse Myelitis has not been added yet.
Diagnostic tests of Transverse Myelitis has not been added yet
Treatments of Transverse Myelitis has not been added yet.
Prognosis of Transverse Myelitis has not been added yet.
Tips or Suggestions of Transverse Myelitis has not been added yet.
References of Transverse Myelitis has not been added yet.
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Community Resources
Title Description Date Link
Transverse Myelitis Association

The Transverse Myelitis Association facilitates support and networking opportunities amongst families; provides educational information; functions as a clearinghouse for articles and research literature; and investigates, advocates for and supports research and innovative treatment efforts.

03/20/2017

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Community User List

I am 58 Years Old

 

 

I am Male, Married

 

 

1 daughter

 

1 son

 

 

I have had Transverse Myelitis since 1971

 

I have had Optic Neuritis since 1971
My name is Lucy, im 21 coming up for 22 and in live in Northampton UK.

 

 

I have a rare neurological condition affecting only 1 in a million people called Transverse Myelitis. I was...
Parent of a daughter recently diagnosed with Transverse Myelitis
In 2005 was diagnosed with Devic Disease.
My husband was diagnosed with Transverse Myelitis in Feb. 07 and experienced a second episode in May. 07.
I am 27 years old wife and mother. I was diagnosed with transverse myelopathy on Jan. 5, 2009 and there is a possibility it is MS. I have 4 daughters. My middle two both have albinism and my second...
52 year old widow, 3 children

 

 

TM hit in 2001, C1 fully involved with partial lesion in T4 and 5.

 

 

Depending on the day and position of the moon and stars MS specialist...

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