Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Serpiginous Choroiditis

What is Serpiginous Choroiditis ?

Serpiginous Choroiditis is a rare inflammatory disease of the retina.

 

Serpiginous Choroiditis is a rare inflammatory disease of the retina.
Acknowledgement of Serpiginous Choroiditis has not been added yet.
Prevalence Information of Serpiginous Choroiditis has not been added yet.
Synonyms for Serpiginous Choroiditis has not been added yet.
Cause of Serpiginous Choroiditis has not been added yet.
Symptoms for Serpiginous Choroiditis has not been added yet.
Diagnosis of Serpiginous Choroiditis has not been added yet.
Diagnostic tests of Serpiginous Choroiditis has not been added yet
Treatments of Serpiginous Choroiditis has not been added yet.
Prognosis of Serpiginous Choroiditis has not been added yet.
Tips or Suggestions of Serpiginous Choroiditis has not been added yet.
References of Serpiginous Choroiditis has not been added yet.
newbie Created by lukeduke89
Last updated 30 Mar 2015, 07:49 PM

Posted by themai4
30 Mar 2015, 07:49 PM

Hi! I just found this forum! I've had Serp for about 8 years now. Was in remission for the last 7 years and have just discovered it is returning. Just wondering what others are doing now. I was on an aggressive medication cocktail for about 18 months after my diagnosis. The dr. was spot on when he said remission can last anywhere from 5-8 years. Any new info/advice is greatly appreciated!

Posted by lukeduke89
5 Mar 2014, 01:58 AM

just introducing myself and looking for information on Serp. not sure how this format works but look forward to conversing with someone

Medications Created by SRhoads
Last updated 1 Jan 2014, 10:33 PM

Posted by SRhoads
1 Jan 2014, 10:33 PM

I was just curious as to what medications everyone takes, how long, etc...and maybe kind of how you were diagnosed and that process? Thanks!

Community Resources
Title Description Date Link

Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

Community Leaders

 

Expert Questions

Ask a question

Community User List

I was diagnosed with Serpiginous Choroiditis in October of 2012.
I am trying to gather all the information I can about the rare disease Serpiginous Choroidopathy. My wife has developed this disease and we was wanting to find out if there might some common...

Start a Community


Don't See Your Condition On Rareshare?

Start your own! With a worldwide network of 8,000 users, you won't be the only member of your community for long.

FAQ


Have questions about rareshare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Discussion Forum

newbie

Created by lukeduke89 | Last updated 30 Mar 2015, 07:49 PM

Medications

Created by SRhoads | Last updated 1 Jan 2014, 10:33 PM


Communities

Our Communities

Join Rareshare to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

FIND YOUR COMMUNITY
Physicians

Our Resources

Our rare disease resources include e-books and podcasts

VIEW OUR EBOOKS

LISTEN TO OUR PODCASTS

VIEW OUR GUIDES

Leaders

Our Community Leaders

Community leaders are active users that have been touched by the rare disease that they are a part of. Not only are they there to help facilitate conversations and provide new information that is relevant for the group, but they are there for you and to let you know you have a support system on Rareshare.