Pulmonary Arterial Hypertension is consistantly high blood pressure in the pulmonary artery.
Hi everyone. I recently joined RareShare due to my T-Cell LGL diagnosis and stumbled upon drnezin's profile a few minutes ago to discover the PAH community. Wow! I was diagnosed with PAH in summer '08. First, I was on Ventavis (iloprost) inhale solution for one year which worked fine before switching to the newest Tyvaso inhale solution. I have been on Tyvaso ever since and doing well considering everything. For having the T-Cell LGL leukemia just recently, my priorities in fighting my complicated health challenges have shifted dramatically. However, I'm keeping a close eye on PAH as well. In fact, there is a potential connection b/w the two as I have recently heard. I would be delighted to chat with anyone with this condition.
Hi Ammy, no I have no experience with htis drug. sorry. I pray you have good results. Barbara
My Cardiologist prescribed Generic accuretic 12.5MG for treatment of high blood pressure (hypertension). He's said reducing high blood pressure helps prevent strokes, heart attacks, and kidney problems. Any experience about this medication.
HI All, so what is everyone's story? I have been diagnosised with PH for 2 years. I have the secondary type caused by my Interstitial Lung Disease. . Happy Spring. Barbara
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.
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Prior to that, I was diagnosed with Cyclic Neutropenia ('01) and managed it well with initially Neupogen (weekly) and...
I am a busy mom, wife, singer, and nursing student. I have been diagnosed with pulmonary hypertension secondary to MCTD, (mixed connective tissue disorder). I am stable now, thanks to...
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