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Primary Angiitis of the Central Nervous System

What is Primary Angiitis of the Central Nervous System?

Primary Angiitis of the Central Nervous System is a disorder that affects the blood vessels in the central nervous system.

 

Primary Angiitis of the Central Nervous System is a disorder that affects the blood vessels in the central nervous system.
Acknowledgement of Primary Angiitis of the Central Nervous System has not been added yet.
Prevalence Information of Primary Angiitis of the Central Nervous System has not been added yet.
Synonyms for Primary Angiitis of the Central Nervous System has not been added yet.
Cause of Primary Angiitis of the Central Nervous System has not been added yet.
Symptoms for Primary Angiitis of the Central Nervous System has not been added yet.
Diagnosis of Primary Angiitis of the Central Nervous System has not been added yet.
Diagnostic tests of Primary Angiitis of the Central Nervous System has not been added yet
Treatments of Primary Angiitis of the Central Nervous System has not been added yet.
Prognosis of Primary Angiitis of the Central Nervous System has not been added yet.
Tips or Suggestions of Primary Angiitis of the Central Nervous System has not been added yet.
References of Primary Angiitis of the Central Nervous System has not been added yet.
Thought I'd reach out Created by seanfwales
Last updated 22 Feb 2014, 06:28 PM

Posted by seanfwales
22 Feb 2014, 06:28 PM

Hi Tiffany, I am interested in hearing how things are going for you, if you don't mind. Any info would be great I hope you are well. Sean

Posted by seanfwales
18 Feb 2014, 03:17 PM

Hi Tiffany, Thank you for your reply. I was starting to think I was alone on this one. Sorry we couldn't be chatting about something a little more pleasant. I live in Boston, MA. Its been quite a journey the past few months. I didn't think a headache would lead to this. I ended up having 2 strokes in Nov. then was diagnosed. I did a month of rituximab and am currently taking steroids. I have recovered from the strokes to I'd say 90% which is great. I did go get scans done 2 weeks ago and unfortunately there has been no improvement to the effected vessels, but I'm feeling ok and go about normal life. So my doctors and I are doing a wait and see kind of thing. Keeping a positive attitude! How about your story? and thankyou again take care, Sean

Posted by TiffanyShaw1977
18 Feb 2014, 06:10 AM

Hi my name is Tiffany Shaw I was diagnosed with pcnsv in 2012. I live in Texas. Where are you at in your journey? Treatment plan....

View Full Thread (1 more posts)
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Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Лучшая финансовая пирамида которая платит http://maks-simka.ru
Hello. I was recently diagnosed with PACNS and currently doing rituximab/steroid treatment. I am seeking any information on this illness. Please contact if you would like to chat. Thankyou

 

...

Trying to find individuals who are facing CNS Vascilitis. I was diagnosed in September 2012 and have little information to go on. I would like to communicate with someone who has the same condition...

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Thought I'd reach out

Created by seanfwales | Last updated 22 Feb 2014, 06:28 PM


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