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Multiple System Atrophy

What is Multiple System Atrophy?

Multiple System Atrophy is a rare neurodegenerative disease caused by cell loss in the brain imparing the autonomic nervous system and the motor system.

 

Multiple System Atrophy is a rare neurodegenerative disease caused by cell loss in the brain imparing the autonomic nervous system and the motor system.
Acknowledgement of Multiple System Atrophy has not been added yet.
4.6http://www.orpha.net
Synonyms for Multiple System Atrophy has not been added yet.
The cause is unknown.
There are several symptoms that affect people with Multiple System Atrophy.
Name Description
Impaired balance, coordination and speech Impaired balance, coordination and speech
Slowed movements Slowed movements
Stiffness and tremors Stiffness and tremors
Loss of sweating Loss of sweating
Tiredness Tiredness
Impotence in male patients Impotence in male patients
Blurred vision Blurred vision
Constipation Constipation
Swallowing difficulties Swallowing difficulties
Head or neck pain Head or neck pain
Urinary difficulties Urinary difficulties
Sleep disturbances Sleep disturbances
Diagnosis is made on physical examination and tests including brain imaging and autonomic function tests.
Diagnostic tests of Multiple System Atrophy has not been added yet
Several treatments are available to treat the symptoms; however, there is no treatment for the disorder itself.
Prognosis of Multiple System Atrophy has not been added yet.
Tips or Suggestions of Multiple System Atrophy has not been added yet.
References of Multiple System Atrophy has not been added yet.
Just diagnosed Created by Patt_c1
Last updated 20 Apr 2009, 11:43 PM

Posted by naaktl1
20 Apr 2009, 11:43 PM

I am glad you've been diagnosed so you can begin to manage your symptoms, and I wish you the best with this. My companion has MSA, he was diagnosed 11 years ago and has beat the odds since then, but now we fear the end is near. The symptoms from which he has suffered include decreased stability and balance when walking, standing, and turning; blurred (double) vision; problems with swallowing (he has had to re-invent how to swallow to compensate - liquids are more difficult than solids); occasional stiff body movements and occassional dizziness; but most of all, breathing difficulties due to atrophy of chest walls - he uses a BI-PAP machine much of the day now, and always every night. One website we have found very helpful is www.shy-drager.org - it is full of all kinds of information about MSA and very easy to understand. If we can answer any specific questions for you please let me know. I will try to check the discussion board.

Posted by Patt_c1
20 Apr 2009, 06:38 PM

I've just been diagnosed with MSA and I am trying to get further information from people who have this. I've gone without a diagnosis since 2006 when suddenly it struck. My doctor finally did a PET scan and found out that the cerebral area of my brain is slow in accepting the radio active glucose. Can anyone describe your symptoms. Thanks a lot.

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My father inlaw has been diagnoised 2009, we would like to contact other people with the disease

 

I am the Director of Outreach & Education for CurePSP.
My dearest friend suffers from MSA, he was diagnosed in 1998.
Ny husband has MSA - I am interested in connnecting with others with this disease and learning about strategies to deal with the symptoms.

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Just diagnosed

Created by Patt_c1 | Last updated 20 Apr 2009, 11:43 PM


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