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Macular Pucker

What is Macular Pucker?

Macular Pucker is scar tissue that has formed on the eye's macula/retina.

 

Macular Pucker is scar tissue that has formed on the eye's macula/retina.
Acknowledgement of Macular Pucker has not been added yet.
Prevalence Information of Macular Pucker has not been added yet.
Synonyms for Macular Pucker has not been added yet.
Cause of Macular Pucker has not been added yet.
Symptoms for Macular Pucker has not been added yet.
Diagnosis of Macular Pucker has not been added yet.
Diagnostic tests of Macular Pucker has not been added yet
Treatments of Macular Pucker has not been added yet.
Prognosis of Macular Pucker has not been added yet.
Tips or Suggestions of Macular Pucker has not been added yet.
References of Macular Pucker has not been added yet.
Don't be afraid. Created by KPISME3
Last updated 28 Jan 2012, 12:20 PM

Posted by KPISME3
28 Jan 2012, 12:20 PM

For anyone out there with a Macular Pucker, don't think that this is such a terrible thing. It is treatable and can be corrected with surgery. If you need to talk to someone about it or have any questions, don't be afraid to join in.

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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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I ws treated for a Macular Pucker and have fully recovered. I was very nervouse about the surgery and what lied ahead. Wanted to join a community where I might be of some help. I am in no way an...

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Don't be afraid.

Created by KPISME3 | Last updated 28 Jan 2012, 12:20 PM


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