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Lymphomatoid Papulosis

What is Lymphomatoid Papulosis?

Lymphomatoid Papulosis is a rare skin disorder suggestive of malignant lymphoma.

 

Lymphomatoid Papulosis is a rare skin disorder suggestive of malignant lymphoma.
Acknowledgement of Lymphomatoid Papulosis has not been added yet.
0.155http://emedicine.medscape.com/article/1098954-overview
Synonyms for Lymphomatoid Papulosis has not been added yet.
No causes are known
Skin lesions (papules) appear on the skin of the torso, arms, and legs in varying numbers. The lesions begin as bumps and may turn necrotic - a scab forms, then falls off leaving a faint, dark scar. The course of bump to necrosis to healing takes place over a few weeks.
Observation followed by skin biopsies to confirm lymphomatoid papulosis and to exclude skin disorders.
Diagnostic tests of Lymphomatoid Papulosis has not been added yet
Treatments of Lymphomatoid Papulosis has not been added yet.
Prognosis of Lymphomatoid Papulosis has not been added yet.
Tips or Suggestions of Lymphomatoid Papulosis has not been added yet.
References of Lymphomatoid Papulosis has not been added yet.
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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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I have multiple autoimmune diseases, have been steroid dependent since 2003.

Addisons disease, Sarcoidosis, Hashimoto’s thyroid, Lymphomatoid Papulosis is the newest diagnosis. 

 

My husband was diagnosed with lymphomatoid papulosis around five years ago he has had ulcers on his legs that have had to be surgically debrised twice over the last two years he is now suffering...

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