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Legg-Calve-Perthes Syndrome

What is Legg-Calve-Perthes Syndrome?

Legg-Calve-Perthes Syndrome is a degenerative disease of the hip joint.

 

Legg-Calve-Perthes Syndrome is a degenerative disease of the hip joint.
Acknowledgement of Legg-Calve-Perthes Syndrome has not been added yet.
23.0http://www.orpha.net
Synonyms for Legg-Calve-Perthes Syndrome has not been added yet.
Cause of Legg-Calve-Perthes Syndrome has not been added yet.
Symptoms for Legg-Calve-Perthes Syndrome has not been added yet.
Diagnosis of Legg-Calve-Perthes Syndrome has not been added yet.
Diagnostic tests of Legg-Calve-Perthes Syndrome has not been added yet
Treatments of Legg-Calve-Perthes Syndrome has not been added yet.
Prognosis of Legg-Calve-Perthes Syndrome has not been added yet.
Tips or Suggestions of Legg-Calve-Perthes Syndrome has not been added yet.
References of Legg-Calve-Perthes Syndrome has not been added yet.
Please Help! Created by Internet_Bijan
Last updated 3 Jan 2016, 11:03 PM

Posted by Internet_Bijan
3 Jan 2016, 11:03 PM

Hello all! If you have a chance, please see my profile for my story. I'm 21 and was just diagnosed with Perthes. Any help would be much appreciated.

foro enfermedad de pertes Created by julianchess
Last updated 23 Mar 2010, 12:57 AM

Posted by julianchess
23 Mar 2010, 12:57 AM

como ha sido su enfermedad, por que tratamiento opto y cuales son sus expectativas

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Hello all. I find myself in one of the toughest times in my life. I am 21 years old an have been diagnosed with perthes disease as of late last year.

 

 

My parents are immigrants who came...
Dx: Fibromyalgia, Legg Calve Perthes
hoping to learn more by connecting with people having similar experiences with TRPS
Escribo desde Madrid (España). Padezco "Fibromatosis Hialina Juvenil" desde que era un bebé de dos meses. Deseo contactar con algun otro paciente pues mi enfermedad es de las más raras y no Existen...
I am a young parent, a medical student, and a lover of music and art. Interested in complementary medicine and all sorts of things!

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Please Help!

Created by Internet_Bijan | Last updated 3 Jan 2016, 11:03 PM

foro enfermedad de pertes

Created by julianchess | Last updated 23 Mar 2010, 12:57 AM


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