Hypokalemic Periodic Paralysis is a rare disorder characterized by muscle weakness or paralysis.
Our friends seizures were like jerking. Sometimes they would last an hour, sometimes shorter. Sometimes they were gentle and other times they were violent. Our friends potassium levels were lower than they should be at the time of taking samples. One sample was taken shortly after a paralysis attack. Our friend does not need to worry about diet now, nor even stress. High salt or low salt, high carbs or low carbs. I can say now that it is a year down the track that our friend has done extremely well. She has no more seizures or paralysis at all, and no more pain in her muscles or muscle weakness. She has been through some huge emotional trials and has come through them without any serious side affects. On a couple of instances we saw a twitch of the neck muscle but that was as bad as it got. Maybe what we are saying here is helpful to some. I pray that it is. Signing off.
Seizures? Could you describe them in more detail? I have attacks that can be mistaken as seizures, called myclonic jerking. The standard trigger for this is cold. Anyone with suspected Hypokalemic Periodic Paralyis should check out the following web sites: http://hkpp.org/ http://hkpp.org/faq/periodic_paralysis.html http://www.periodicparalysis.org/ What were your friend's potassium levels, what was her state when the blood was drawn. I sometimes have full body paralysis attacks (none of my muscles moving or they are extremely weak and it is difficult to move them). Standard trigger is carbohydrates or it is too cold. When my muscles burn with the fire of a thousand suns, the cause is too much salt in my diet. If this is a problem, she should try to avoid eating salty foods as much as possible.
That was the very frustration we had. There were no doctors willing to test for HKPP altough all of our reading suggested that was the case. We even had potassium levels tested and all the potassium levels were miles outside of the normal regions - even the doctors acknowledged that but they were not willing to test further. A question for you, why do you think our friend has such unexplainable seisures? It started about two years earlier with a freezing of the hand. Later it developed into various limbs, and for the last year it was her whole body at times, even the neck and facial muscels. The only thing that would not freeze was her eyelids and we communicated trough the eyelids.
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