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Horner's Syndrome

What is Horner's Syndrome?

Horner syndrome is a rare disorder characterized by damage to the sympathetic nerves of the face and eye.

 

Horner syndrome is a rare disorder characterized by damage to the sympathetic nerves of the face and eye.
Acknowledgement of Horner's Syndrome has not been added yet.
Prevalence Information of Horner's Syndrome has not been added yet.
Synonyms for Horner's Syndrome has not been added yet.
Cause of Horner's Syndrome has not been added yet.
Symptoms for Horner's Syndrome has not been added yet.
Diagnosis of Horner's Syndrome has not been added yet.
Diagnostic tests of Horner's Syndrome has not been added yet
Treatments of Horner's Syndrome has not been added yet.
Prognosis of Horner's Syndrome has not been added yet.
Tips or Suggestions of Horner's Syndrome has not been added yet.
References of Horner's Syndrome has not been added yet.
Hi Created by lorraine230
Last updated 9 Feb 2009, 06:07 PM

Posted by lorraine230
9 Feb 2009, 06:07 PM

Hi Phazy 8 I'm in Florida too. How long have you had Horner's syndrome? Lorraine

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Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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I'm concerned my husband has Harlequin Syndrome and am trying to find out more about it.

 

 

17/10 Think now it might be Horners instead as his right seems to be affected too, mildly.
Suffering from Horner's Syndrome
I'm a wife mother of three. I live on the Soth East coast of FL.Was diagnosed with FMD of both internal carotids in 2006. I'd been having severe headache for about 2 weeks, Thought I had sinus...
Developed this disorder 8/07 after mowing lawn in too hot weather. Right half of face does not sweat or flush, so I have a red half and a white half when exercising, hot weather, blush. Recently...

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Hi

Created by lorraine230 | Last updated 9 Feb 2009, 06:07 PM


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