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Churg-Strauss Syndrome

What is Churg-Strauss Syndrome?

Churg-Strauss Syndrome is a rare medium and small vessel autoimmune vasculitis, leading to necrosis.

 

Churg-Strauss Syndrome is a rare medium and small vessel autoimmune vasculitis, leading to necrosis.
Acknowledgement of Churg-Strauss Syndrome has not been added yet.
1.0http://www.orpha.net
Synonyms for Churg-Strauss Syndrome has not been added yet.
Cause of Churg-Strauss Syndrome has not been added yet.
Name Description
Asthma Asthma
Eosinophilia An excessive number of eosinophils in the blood
Fever Fever
Nasal Polyps Nasal Polyps
Diagnosis of Churg-Strauss Syndrome has not been added yet.
Diagnostic tests of Churg-Strauss Syndrome has not been added yet
Treatments of Churg-Strauss Syndrome has not been added yet.
Prognosis of Churg-Strauss Syndrome has not been added yet.
Tips or Suggestions of Churg-Strauss Syndrome has not been added yet.
References of Churg-Strauss Syndrome has not been added yet.
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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Community User List

Fit, happy-go-lucky, in love and now....sick and scared. Just trying to get information and support. Churg-Strauss. ..
61 y/o diagnosed 3 years ago. currently on meds.
I'm 65 yrs old..always been in good health..played tennis over 30 yrs. etcl..until I got CSS in 2004..going down hill..ha but I have to keep going..plus I help take care of my 5 yr. old...
I've had churg strauss since 2005.

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