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Chronic granulomatous disease

What is Chronic granulomatous disease?

Chronic granulomatous disease is a rare group of hereditary diseases characterized by the inability to resist infectious diseases.

 

Chronic granulomatous disease is a rare group of hereditary diseases characterized by the inability to resist infectious diseases.
Acknowledgement of Chronic granulomatous disease has not been added yet.
0.2http://www.orpha.net
Synonyms for Chronic granulomatous disease has not been added yet.
Cause of Chronic granulomatous disease has not been added yet.
Symptoms for Chronic granulomatous disease has not been added yet.
Diagnosis of Chronic granulomatous disease has not been added yet.
Diagnostic tests of Chronic granulomatous disease has not been added yet
Treatments of Chronic granulomatous disease has not been added yet.
Prognosis of Chronic granulomatous disease has not been added yet.
Tips or Suggestions of Chronic granulomatous disease has not been added yet.
References of Chronic granulomatous disease has not been added yet.
CGD adults having bmt Created by CGDA
Last updated 27 Oct 2015, 08:37 PM

CGD adults having bmt Created by CGDA
Last updated 27 Oct 2015, 08:36 PM

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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Community User List

My name is Mary and my husband's name is Alan. We started the Chronic Granulomatous Disease Association, Inc. (CGDA) in 1982 as there were no support groups for CGD. We are international with over...
My daughter, Nicole Ellis, has Chronic Granulomatous Disease. She is 19 years old.
I am the President and Founder of StopCAIDnow,Inc. (www.stopcaidnow.com), in process of becoming a 501 (3) non-profit dedicated to educate, awareness diverse genetic testing, genomics and...
My 7 year old son has just be diagnosed with CGD and we are trying to adjust to this.

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CGD adults having bmt

Created by CGDA | Last updated 27 Oct 2015, 08:37 PM

CGD adults having bmt

Created by CGDA | Last updated 27 Oct 2015, 08:36 PM


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