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Cavernous Angioma

What is Cavernous Angioma?

Cavernous Angioma is a vascular disorder of the central nervous system.

 

Cavernous Angioma is a vascular disorder of the central nervous system.
Acknowledgement of Cavernous Angioma has not been added yet.
Prevalence Information of Cavernous Angioma has not been added yet.
Synonyms for Cavernous Angioma has not been added yet.
Cause of Cavernous Angioma has not been added yet.
Symptoms for Cavernous Angioma has not been added yet.
Diagnosis of Cavernous Angioma has not been added yet.
Diagnostic tests of Cavernous Angioma has not been added yet
Treatments of Cavernous Angioma has not been added yet.
Prognosis of Cavernous Angioma has not been added yet.
Tips or Suggestions of Cavernous Angioma has not been added yet.
References of Cavernous Angioma has not been added yet.
Any brainstem cavernoma experts? Created by mjgroves11
Last updated 16 Dec 2012, 06:44 PM

Posted by mjgroves11
16 Dec 2012, 06:44 PM

Does anyone in this community have a cavernoma on the brainstem? If so, have you found a surgeon experienced with this type of cavernoma?

cavernoma malformation Created by codogno
Last updated 18 Jul 2009, 07:24 PM

Posted by codogno
18 Jul 2009, 07:24 PM

good day all. i just had a craniotomy for cavernama malformation right frontal lobe ( affecting left motor strip ) , i was wondering if any one has any information about this .

DVA's and cavernoma recurrence Created by gcvmom
Last updated 16 Sep 2008, 05:30 PM

Posted by gcvmom
16 Sep 2008, 05:30 PM

Has anyone here been dx'd with one or more cavernoma's along a DVA? Have you had any of the cavernoma's resected? Did you eventually have more develop along the DVA?

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CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

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After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Community User List

I lost my six year old daughter to familial cerebral cavernous malformation in 2001.
I have multiple cavernous angiomas. I have had multiple bleeds. I also have lymphangioma and hemangioma.
Mother of 4 children from 14 to 27 years old.
I have three family members with rare disorders.

 

 

One son with Crohn's disease.

 

One son with Sydenham's chorea.

 

And my husband who has a cavernous angioma in the right...

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Discussion Forum

Any brainstem cavernoma experts?

Created by mjgroves11 | Last updated 16 Dec 2012, 06:44 PM

cavernoma malformation

Created by codogno | Last updated 18 Jul 2009, 07:24 PM

DVA's and cavernoma recurrence

Created by gcvmom | Last updated 16 Sep 2008, 05:30 PM


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