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Autism

What is Autism?

Autism is a brain development disorder that impairs social interaction and communication, and causes restricted and repetitive behavior, all starting before a child is three years old

 

Autism is a brain development disorder that impairs social interaction and communication, and causes restricted and repetitive behavior, all starting before a child is three years old
Acknowledgement of Autism has not been added yet.
45.0http://www.orpha.net
Synonyms for Autism has not been added yet.
Cause of Autism has not been added yet.
Symptoms for Autism has not been added yet.
Diagnosis of Autism has not been added yet.
Diagnostic tests of Autism has not been added yet
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Communication Created by krislynn200002
Last updated 25 Oct 2008, 12:58 AM

Posted by krislynn200002
25 Oct 2008, 12:58 AM

I have a daughter she is 8 years old today and I"m trying to find out hwo to get her to communicate her needs/wants, we have the boardmaker program and I use the PECS consistanly and also Sign language (ASL). I know that she has many more words in her head just how to get them out? She is also deaf and hard of hearing...Any suggestions would be greatly appreciated.

Welcome Created by biotechguy
Last updated 9 Jul 2008, 04:46 PM

Posted by mummy2three
9 Jul 2008, 04:46 PM

Hi, I am the mother of a verbal high-functioning autistic son. From day 1, I knew that something was wrong with hm but he did not get diagnosed with autism until he was 7-years-old (he is 15 now). His main issues are not sleeping, very compulsive, hyper and major sensory issues.

Posted by biotechguy
7 Jul 2008, 09:33 PM

Welcome to the Autism community!

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Clinical Trials


Cords registry

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Enrolling is easy.

  1. Complete the screening form.
  2. Review the informed consent.
  3. Answer the permission and data sharing questions.

After these steps, the enrollment process is complete. All other questions are voluntary. However, these questions are important to patients and their families to create awareness as well as to researchers to study rare diseases. This is why we ask our participants to update their information annually or anytime changes to their information occur.

Researchers can contact CoRDS to determine if the registry contains participants with the rare disease they are researching. If the researcher determines there is a sufficient number of participants or data on the rare disease of interest within the registry, the researcher can apply for access. Upon approval from the CoRDS Scientific Advisory Board, CoRDS staff will reach out to participants on behalf of the researcher. It is then up to the participant to determine if they would like to join the study.

Visit sanfordresearch.org/CoRDS to enroll.

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Communication

Created by krislynn200002 | Last updated 25 Oct 2008, 12:58 AM

Welcome

Created by biotechguy | Last updated 9 Jul 2008, 04:46 PM


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