Systemic Capillary Leak Syndrome Community

Community Statistics

Discussion Topics: 54
Community Members: 90

Brief Description

Systemic Capillary Leak Syndrome (SCLS) is an exceedingly rare, life- and limb-threatening disorder characterized by acute and severe recurrent attacks featuring a rapid fall in blood pressure due to the temporary leak of plasma out of the blood circulatory system.

This virtual community is dedicated to the memory of Judith (Judy) Lynne Davis (1958-2009), one of its founding members and a recent victim of a very severe episode of SCLS that took her life.

Community Expert

The following user is the expert in this community:

Porzecanski
Arturo C. Porzecanski
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Synonyms

SCLS, Idiopathic Systemic Capillary Leak Syndrome, Clarkson's Disease, Clarkson's Syndrome.

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Discussion Forum

Title Created by Last updated
Excessive bloating in abdominal area maire602 1 day ago
Link to newspaper article cmanmommy 11 days ago
Terbutaline vs. Theophylline Josephite 13 days ago
Looking for SCLS patients to tell their diagnosis stories MysteryDiagnosis 16 days ago
ECP and SCLS alapenna 18 days ago

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