Discussion Topics: 54
Community Members: 90
Systemic Capillary Leak Syndrome (SCLS) is an exceedingly rare, life- and limb-threatening disorder characterized by acute and severe recurrent attacks featuring a rapid fall in blood pressure due to the temporary leak of plasma out of the blood circulatory system.
This virtual community is dedicated to the memory of Judith (Judy) Lynne Davis (1958-2009), one of its founding members and a recent victim of a very severe episode of SCLS that took her life.
The following user is the expert in this community:
SCLS, Idiopathic Systemic Capillary Leak Syndrome, Clarkson's Disease, Clarkson's Syndrome.
Learn More About this Disorder
| Title | Created by | Last updated |
|---|---|---|
| Excessive bloating in abdominal area | maire602 | 1 day ago |
| Link to newspaper article | cmanmommy | 11 days ago |
| Terbutaline vs. Theophylline | Josephite | 13 days ago |
| Looking for SCLS patients to tell their diagnosis stories | MysteryDiagnosis | 16 days ago |
| ECP and SCLS | alapenna | 18 days ago |
You have to join this community to be able to post messages on its forum or update its information.
It’s free and easy to join RareShare. Click here to signup for an account.
Chromosome 4q Deletion Syndrome
about 17 hours ago
Tolosa-Hunt Syndrome
about 21 hours ago
Systemic Capillary Leak Syndrome
1 day ago
Bilateral Diaphragmatic Paralysis
1 day ago
Antisynthetase Syndrome
2 days ago
Have questions about RareShare?
Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.