We are changing the way people communicate about rare medical disorders

RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders.

Why Rare Disorders?

While rare disorders seem to impact only a small portion of the population, together they affect over 30 million people in the United States and Europe. Due to the comparably low level of occurrences of individual rare disorders, there is often a lack of information and support for patients and their families. We're working to change this.

Experience the Benefits of RareShare Membership

It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:

  • Communicate with others that are affected by the same disorder
  • Contribute new information and personal experiences to your disorder community
  • Find additional resources specific to your disorder

Become a Member

It’s free and easy to join RareShare. Click here to signup for an account.

Nephrogenic Systemic Fibrosis

Recently Updated Communities

Hereditary Inclusion Body Myopathies
4 days ago

Systemic Capillary Leak Syndrome
5 days ago

Microduplication 22q11.2 Syndrome
6 days ago

Tarlov Cyst
25 days ago

Schnitzler Syndrome
28 days ago


Have questions about RareShare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.